Support for the informal care of a sick or disabled child or young person
If you take care of your child with a long-term illness or a disability at home, you may have the right to receive informal care support.
You may be entitled to get informal care support. Contact the social welfare services in your municipality.
If your child is below 16 years old and has a long-term illness or a disability, Kela will pay you a disability allowance for persons under 16 years in support of care at home. A special form of assistance is available for the home care of a person 16 years old or older with a long-term illness or a disability.
Kela can pay a special care allowance to compensate for the loss of earnings of a parent participating in the care or rehabilitation of a sick or disabled child living with the family. The care or rehabilitation can take place in a hospital, clinic, rehabilitation services or adaptation training. You need a medical certificate to get the allowance.
Yes. The informal carer does not have to manage everything alone. A disabled child or young person may be entitled to a personal assistant based on their need in addition to having a family member act as their carer.
The municipality pays for the salary of the personal assistant. A person living in the same household can act as the personal assistant of a disabled person. However, a family member, such as the parent of a disabled child, can only act as an assistant for a justified reason.
Yes. The parents of a child with a long-term illness or a disability have the right to a partial parental leave until the child turns 18. Kela pays a partial care allowance during the parental leave.
An informal carer can provide care for a person of any age. However, every family's solutions must be considered on a case-by-case basis.. The young person may wish and be able to live in independent supported housing, or some other form of housing may be suitable for them. The disabled services of the social welfare services help the young person and their family in finding the most suitable form of housing and care arrangements.