Support for the informal care of a sick or disabled child or young person
If you take care of your child with a long-term illness or a disability at home, you may have the right to receive informal care support.
You may be entitled to get informal care support. Contact the social welfare services in your municipality. It is also possible to apply to the municipality for other services that support coping at home.
Disability allowance for persons under 16 years may be granted to a disabled or sick child who requires regular care, attention and rehabilitation. The need for care and attention must be higher than normal and last for at least 6 months. When reaching the age of 16, the child may be entitled to a disability allowance for persons aged 16 years or over.
To compensate for the loss of income, Kela may pay a special care allowance to the guardian. It is paid in a situation where the guardian of a sick or disabled child under 16 years is unable to work because of having to participate in the child’s care or rehabilitation. The guardian may also be entitled to a special care allowance if he or she participates in the child’s rehabilitation in hospital, at an outpatient clinic, in rehabilitation or in adaptation training. Entitlement to special care allowance requires a medical certificate D.
The parent of a child with a disability or long-term illness requiring special care may be entitled to partial care leave until the child turns 18. In certain situations, you can apply to Kela for partial care allowance.
Yes. The informal carer does not have to manage everything alone. A disabled child or young person may be entitled to a personal assistant based on their need in addition to having a family member act as their carer.
The municipality pays for the salary of the personal assistant. A person living in the same household can act as the personal assistant of a disabled person. However, a family member, such as the parent of a disabled child, can only act as an assistant for a justified reason.
An informal carer can provide care for a person of any age. However, every family's solutions must be considered on a case-by-case basis.. The young person may wish and be able to live in independent supported housing, or some other form of housing may be suitable for them. The disabled services of the social welfare services help the young person and their family in finding the most suitable form of housing and care arrangements.